Saturday, January 24, 2009

God gives and takes away. Blessed be His Name

Thank you so much for all of your prayers.
We feel each one. Our hope is in Christ Jesus so we look forward to heaven and thank God for every day He gave us with Daniel.
I love you so much my little Daniel, my sweet lamb.

Friday, January 16, 2009

Noah gets his NAM!!

Noah got his NAM today and boy does he look sharp in it! NAM stands for nasoalveolar molding. It is an appliance that molds the hard and soft tissues of his lips and mouth into a better position for surgical correction to be performed later. Amy and Noah were at the prosthodontists office for several hours in order to get this thing in and adjusted correctly. Noah is handling the NAM better than we expected and he actually seems to feed better with it in. He will wear this appliance 24/7 for at least 3-4 months before he has his first surgery to correct his lip. We only take it out once a day to clean it and clean his mouth and that is not a fun experience for him!

Big yawn!

"I'm not sure about this thing..."

Tuckered out from a long.... day.


This is the NAM. It looks like a baby denture
with two beads on the front that allow us to 
attach rubber bands and tape.

Friday, January 9, 2009

Finally home!!

Noah is already 10 days old ! and is doing so well! So far all genetic tests have come back negative! He is gaining weight and able to hold down most of his feedings!! We cannot thank you enough for all your prayers! God is faithful and has done more than we could have asked or imagined! Wow! We are so amazed at our God, the Great Physician! He is so so gracious to us!  

Noah's first surf lesson!! 

first bath !!

Out of the hospital just in time to watch his Clemson Tigers play for the first time in the Gator Bowl!!  ... Needless to say, he cried himself to sleep that night... 

Thursday, January 1, 2009

Noah has arrived!

such a miracle!! 

we finally get to bring him to our room and cuddle! 

visiting hours in the nursery !! 

I can't believe he was inside of me! 

Noah has bilateral cleft lip and palate so feeding has been a bit of a learning curve, but Noah has been pretty patient with us as we learn all the tricks!  I think he is as anxious to go home as we are! 

He is finally here! 
6 lbs 5 oz and 20 inches long!
God is so good to us!!